Nystagmus Network charity was founded in 1984 to support patients living with the condition. They currently have 500 members but estimate there are more than 64,000 patients in the Uk living with the condition that they would love to support. This is why they want to expand their reach to engage with eyecare professionals to raise awareness of the charity and encourage referrals from eyecare professionals.
Daniel Williams, Trustee said “We are delighted to launch our new eyecare professional CET webinars and host some of the ground breaking speakers. We are a small charity wanting to grow our membership and engagement for the benefit of our beneficiaries”
The Nystagmus Network is a registered charity in England and Wales, number 118450. They provide support and information to people living with all forms of nystagmus and the professionals who work with them.
Nystagmus is a complex, incurable eye condition characterised by involuntary movements of the eyes where they appear to wobble or flicker from side to side, up and down or round and round.
Nystagmus affects ability to focus, recognise faces and judge speed and depth.
The charity offers support and information to the 1 in 1,000 or more people affected by nystagmus, raises awareness through an annual Nystagmus Awareness Day on 20 June, whilst also investing in research into the condition to find a potential treatment.
Here are a list of the upcoming webinars you can book on. Each webinar will give you 1 CET point.
Nystagmus Network CET Webinars
The Nystagmus Network is delighted to host a series of webinars all about nystagmus for eyecare professionals. Each Webinar will provide 1 CET point.
Tuesday 26th May – 10:30
A Clinician’s Guide to Nystagmus
Nystagmus affects 0.24% of the population, yet it is a very poorly understood condition. Optometrists will regularly encounter patients with the condition in practice, especially in the low vision setting. Knowing how to modify routines appropriately, as well as how to classify and potentially refer patients for treatment, will help maintain high clinical standards.
This lecture will provide an optometrist’s up-to-date guide to nystagmus, covering diagnosis, classification, and how to modify a standard routine. Currently available treatments will be discussed.
Delivered by Dr Matt J Dunn who is a lecturer and optometrist at Cardiff University. His research focuses on clinical disorders of visual perception and oculomotor control. At the School of Optometry and Vision Sciences, he teaches clinical orthoptics. Matt is the author of the mobile ophthalmology reference text Dunn Vision Reference.
Register Now:
https://us02web.zoom.us/meeting/register/tZIsdeiprjgrGdBNXXaDi5OM3xAVbbjJ01Uw
Wednesday 27th May
Diagnosing Nystagmus – how, why and when?
Jay will be talking about how Optometrists might approach patients with nystagmus and tips and tricks about what to look for, deciding how urgently to refer and what happens once they reach a specialist centre. No prior knowledge is expected!!
Delivered by Jay E Self BM FRCOphth PhD who is a Consultant Paediatric Eye Surgeon and Associate Professor at the university of Southampton. He runs a research group with an interest in nystagmus, albinism and childhood visual disorders and works closely with Helena Lee who is also a Consultant and Associate Professor in Southampton. Jay is a medical advisor to 4 support charities, a board member of 2 charities and ambassador for one. He has worked both as a researcher and clinician in the field of nystagmus for 15 years. He is a founder member of the Nystagmus UK Eye research group (NUKE).
Register Now:
https://us02web.zoom.us/meeting/register/tZAuf-6gqDspG9SDnkvIRJxpn0jAbi-SOmMM
Thursday 28th May – 10:30
Testing, Dispensing and Supporting Patients with Nystagmus
The holistic view of supporting a patient with nystagmus. A practical approach on how to test, dispense and support a patient with Nystagmus.
Delivered by Bhavin Shah, Behavioural Optometrist and Jayshree Vasani, Dispensing Optician. Bhavin is passionate about lifelong learning and technology to enable patients to optimise their vision. Jayshree is passionate about supporting patients with visual impairments and empowering the profession with her knowledge.
Register Now:
https://us02web.zoom.us/meeting/register/tZckcOmhqDIrGNDAIJK8AXsOXUWEYw9Cuti-
Contact
Sue Ricketts, Executive Information and Development Manager
Tel: 01427 718093
Email: [email protected]
LinkedIn: https://uk.linkedin.com/in/sue-ricketts-38305b176
Enquiries
Tel: 01427 718093
Email: [email protected]
Website: https://nystagmusnetwork.org/